Samuela Papa

Agostino’s Mom

Agostino spent his first eight months of life in the hospital because he had serious health problems. He was diagnosed at birth with CHARGE syndrome, a severe genetic disease involving multisensory disabilities, developmental delay, and respiratory distress. When he came home, my husband and I were at a loss as to how to raise a child so vulnerable without the right tools. But then, we got in contact with Lega del Filo d’Oro, and things changed. Here not only did I find support, I learned how to communicate with my son, and I saw him making significant progress every day. It’s a huge job, for him and for me, yet every day is a good day. We made some important achievements thanks to a team of highly qualified specialists that immediately focused on the assessment of his potential. At first, he didn’t want any physical contact, but now he has learned how to express his needs, how to hug, how to be affectionate. It seems simple, but for us, it is a new thing. What a relief it is to see him open up and grow up more peaceful!