Stories

Agostino spent his first eight months of life in the hospital because he had serious health problems. He was diagnosed at birth with CHARGE syndrome, a severe genetic disease involving multisensory disabilities, developmental delay and trouble breathing. When he came home it was a nightmare for me and his father to raise a child so...

“Help” is the word that I associate with the Lega del Filo d’Oro. I had just lost my father and learned that I was not only suffering from Usher’s syndrome (which involves auditory and visual problems), but also from multiple sclerosis. Desperation could have taken over, but the association’s staff in Rome has helped me...

Happiness? Happiness is not the finish line, but the combination of many small moments that can be complicated, but also fantastic. I can enjoy a nice dinner with friends, I can chat with someone new, and I solve difficult problems. It’s not that I’m extremely intelligent, it’s that I’ve learned so much since I came...

As an American adopting a 7-year-old special-needs child that would live with me in Italy, I came to the Lega del Filo d’Oro through recommendations from several leading deafblind organizations in the U.S. and the UK.   LFO has been an indispensable partner in raising my daughter, Rekha.  We started with  a visit to the Diagnostic...